SOCIAL GOOD: Behind AIDS – Perspectives from Canada and Tanzania

SOCIAL GOOD: Behind AIDS – Perspectives from Canada and Tanzania

nancy sumari and alison fraser

I am by no means an expert on HIV or AIDS. In fact, other than knowing some basic statistics and facts on transmission, I have never really given much thought to the social implications of living with the virus.  This wasn’t intentional, but most likely the result of the small bubble in which I was living for most of my life; a bubble that did not include any friends or family directly affected by the virus. That all changed, last November, when I visited Arusha, Tanzania to meet some of the students in the Mom2Mom Africa Organization, a small not for profit that I founded several years before. I knew some of our students came from families in which some members were positive. Some were left orphaned by the disease. But what I didn’t realize was how this impacted these children in terms of treatment by their local community, regardless of their HIV status. I learned of children who were shunned by the church because the deaths of their parents was attributed to AIDS. I learned of other families shunned by their own relatives for the same reason. In some instances, the children were not even aware of why their parents died. It was hidden to protect them.

I left Tanzania with a heavy heart, but it was made heavier by the stories of the struggles of some of our students because of the AIDS pandemic. I had suspected that discrimination existed but I now had little faces associated with that discrimination haunting me, making it more real. Students are accepted into Mom2Mom Africa regardless of HIV status…I can think of operating no other way.  In fact, we only request medical information so we can provide the appropriate health care.

I was now beginning to understand that this virus was not only killing people, but leaving behind families to deal with the shameful treatment by society.

Our affected students not only required extra medical attention, but also more emotional support.

I began to wonder if those affected by HIV/AIDS in Canada feel the same degree of isolation. Did being HIV positive in Canada carry with it the same stigma as in Tanzania? I decided to find out. Speaking to the AIDS Committee of Cambridge, Kitchener, Waterloo & Area (ACCKWA), I learned that, unfortunately, Canadians often face the same discrimination and stigma. Although laws are in place to help prevent discrimination, it still occurs. Many of those affected by HIV are judged, and often blamed for their HIV status. Thankfully, there are support groups such as the ACCKWA that provide a safe place and much-needed services to those living with HIV  in our local community.

After speaking to ACCKWA, I contacted my friend, and fellow World Moms Blog contributor, Nancy Sumari to discuss what support services are in place for those living with HIV, and their families, in Tanzania. Nancy is part of the “I am Positive” Campaign in Tanzania. The campaign was established in response to reports by those living with HIV of being discriminated against and, in some cases, being physically assaulted and emotionally abused because of their HIV status. The campaign has several main objectives, but the one that hit home the most was:

“To live with HIV/AIDS is NOT to live without human rights and dignity”.

The power of that message is not only incredible, but universal. Regardless of what country you live in, what part of the world you live in, and what your HIV status is, you have the right to basic human rights and to live with dignity. We ALL deserve this.

As I reflect on this past year, and what I have learned about the realities those living with HIV face each and every day, I can’t help but dream of a day when the stigma no longer exists; a day when judgement and discrimination are replaced with support and understanding.  Or better yet, I dream of a day when HIV and AIDS move from pandemic status to curable infection.  But, until then, I hope that empathy prevails for all those living with HIV, as well as for their families.

This is an original post written by Alison Fraser for World Moms Blog.

Alison Fraser

Alison Fraser is the mother of three young girls ranging in age from 5 to 9 years old. She lives with her family in Cambridge, Ontario, Canada. Alison works as an Environmental Toxicologist with a human environment consulting company and is an active member of the Society of Environmental Toxicology and Chemistry (SETAC). She is also the founder and director of the Canadian Not for Profit Organization, Mom2Mom Africa, which serves to fund the school fees of children and young women in rural Tanzania. Recently recognized and awarded a "Women of Waterloo Region" award, Alison is very involved in charitable events within her community including Christmas Toy and School Backpack Drives for the local foodbank.

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BELGIUM: The Adopted Little Sailor

BELGIUM: The Adopted Little Sailor

3777834366_869456969b_zIn preparation for our adoption, we had to take an intensive course, dealing with the many dynamics involved. A while later, our gained knowledge, but also our personal history, relationship, parenting skills and social network were scrutinized by a social worker and a psychologist.

During those months and months of preparation, there are two statements that came up several times and which I will always remember:

1)      Having children is NOT a universal human right. Having a parent – or a dedicated caregiver – IS.

In other words: We were not entitled to a child. It’s the child’s benefit that comes first at all times. A hard lesson to learn for some, and next to impossible to swallow when the judge doesn’t give you the much hoped for green light. But true nonetheless.

2)      We were NOT judged for our parenting skills. We were judged for our ADOPTIVE-parenting skills.

Especially to couples that were already parents, the course and social exams could be seen as an affront. And yes, it could be quite provoking and private at times. But in our case is was also very respectful at all times, and educating as well. And it was necessary.

Why? Because adopted children come with a backpack filled with their history. Because, as an adoptive parent, you might need to help carry that backpack.

A central topic to both the course and the exam was: attachment, and with that, basic trust. It was explained to us beautifully by ‘The parable of the little sailor’, in which a child is at first safely on a boat. All of a sudden, she finds herself in a storm. The boat sinks and she struggles to survive. When next she is picked up by a new boat, full of small children like her, and a new captain, it takes a while before she believes that the captain will keep them safe. And she proved right to be hesitant, because a new storm comes up and eventually, that boat also sinks. The child is alone again. From that point on, the child decides to not trust any captains any more. So when a new boat arrives, she goes in hesitantly, because she has no other choice. But she will keep her guards up for a long time now. She will test the captain’s sailing skills over and over again, and whenever a storm comes, she will be ready to take over control.

Some adopted children will have experienced more boats, more caregivers, than others. Some will have had worse storms than others. In quite some cases, gaining the trust of that little sailor will be a tremendous task for the final captains of its journey, the adoptive parents.

Attachment disorder can be an overwhelming Damocles’ sword that hangs above an adoptive family.

We were told the best way to avoid attachment disorder, was to make sure we were going to be the only captains during our precious sailor’s first months on our boat. A minimum of six months of semi-isolation, they recommended. Ideally not letting anyone else take care of her, not even hand her gifts. After that, the time she would need to safely attach to us and rely on us to steer the boat, was estimated as her age upon adoption, multiplied by two.

Our daughter was 2.5 years old when she came to live with us, and she’s been with us for three years now. That means we still have at least 2 years to go for her to let go of her anxieties and mistrust.

At least 2 years. Probably longer, if we look at where she is today on her journey towards trust and attachment. I personally believe attachment, at least for our daughter, will be a constantly evolving process for many years to come.

We’ve also had our share of storms. For one, we broke her trust those first, crucial months. You see, in Belgium, maternity leave is fairly short, only 15 weeks. When adopting, it’s even less. We were ‘lucky’ to adopt when our girl hadn’t reached the age of 3 yet, so I got to stay at home with her for 6 weeks. When your child is older, you only get 4 weeks. Or zero weeks, when the child has reached the age of 8, or when you’re a foster parent… So, a maximum of 6 weeks to complete this huge task of gaining trust. It’s extremely frustrating to have been pressed repeatedly on the importance of a strong basis for attachment and then being forced to send that little sailor off to another captain, one in the boat of day care or kindergarten, after a mere 6 weeks or less.

There have been quite some voices and petitions these lasts months, to once and for all equalize maternity leave rules for all sorts of parenthood, including adoption and foster care.  The old statement of ‘You don’t need physical recovery from adoption like you do from giving birth, so you don’t need the same amount of time’ has lost its validity the moment regular maternity leave was extended with an additional (unpaid) month, for the sake of ‘bonding of mother and child’.

No need to say the adoptive community was outraged, or at least strongly disappointed at that time. We still are. The adversaries of our request don’t seem to understand that we don’t ask longer maternity leave for ourselves, although I must admit that some time for emotional recovery would have been very welcome in those first, stormy months.

But essentially, we request it for the benefit of the little sailors to come. They deserve more time to explore, defy and scrutinize their new captains.

How long is maternity leave in your country? Is the same for all kinds of parenthood? And how long do you believe it should be?

This is an original post to World Moms Blog by K10K from The Penguin and The Panther.

Photo by Alejandro Groenewold under Creative Common license

K10K

If you ask her about her daytime job, K10K will tell you all about the challenge of studying microbes in extreme environments, going from the deep underground to outer space. Her most demanding and rewarding job however is raising the Penguin and the Panther, her seven and five year old little rascals. The Penguin grew in her belly, turned out very, very white and wants to become a meteorite examiner, fireman and artist. The Panther grew in her heart, had quite, quite dark skin and wants to become a teacher, mother of thirteen babies and famous musician. Together they provide most of the feed for her blog, The Penguin and The Panther, but they are also the primary cause of why she struggles to find the energy for writing anything lately...

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